Hi Everyone!

New Year – New Start

2018 saw many changes, not least of which was the stepping down of Karen Smith as Group Leader. Since Karen’s departure, Gill, Lesley and myself have been busily working behind the scenes to continue Karen’s legacy and take the Fibromyalgia Support Group forward. And boy have we been busy!

First of all I am delighted to announce the launch of our NEW WEBSITE!!




It’s there to help anyone on the island with FMS, CFS and related conditions, with articles, newsletters and information about forthcoming events. I’m expecting it to grow over the coming weeks as more articles and information are added. The site is a resource for you to use and rely on.

To help raise some much-needed money for the group we are also selling a limited amount of advertising space on the site. This will be exclusively for clinical practitioners whose services will benefit Fibro sufferers and the like. This would include chiropractors, pain relief specialists, physiotherapists, psychotherapists and so forth. If you are interested, or know a practitioner who might be, take a look at the ‘Advertising’ page here.

Secondly, I want to announce a drive to get new members and welcome old ones back to the group. I’m always saying that we are community, and the Group Meetings are the heartbeat of that community. You can see all the doctors you want, but there’s nothing like sitting down and having a cup of tea with someone who actually knows what it’s like. Someone who understands.

So we would like to ask you:

  • What did you expect from the group when you joined?
  • What would you like to see more of at Group Meetings?
  • If you haven’t attended for a while, what would bring you back?

I cannot begin to tell you how important this is to us, so please tell us. And be as frank and forthright as you please. This is a community for all of us and we want everyone to feel included.

As always, the email address is iwfmsgfibrogroup@gmail.com. I’m looking forward to hearing from you.


Next meeting – Yoga!

This will be a very special month because we will be having a seated yoga presentation followed by a relaxation session. Alison is coming all the way from Totland, so it would be great if we could all be there, both to welcome her, and to benefit as much as possible from what she has to teach us.

Alison is making no charge for this, but it would be very helpful to her if, as a group, we could all donate something to her fuel costs.


Raffle Prizes

The monthly raffle is always great fun but we’re running low on prizes. Given that it’s now a month since Christmas and the relatives aren’t really going to care what happened to that awful pair of socks they bought you, why not donate them to the raffle? The same goes for that novelty custard-flavoured bubble bath, and those singing slippers.

Seriously, we’ve all got stuff knocking around we don’t need, so bring it along and let it go to a good cause.


Mood Music

Finally, do you ever use Deezer? If you’re not familiar with Deezer.com, it’s an online music service which lets you listen to music free of charge. Now, if you’re listening through their website, you get adverts in between all the tracks, which can be a little off-putting.

But, if you download the Deezer app onto your computer, you can listen to your chosen music without the ads. Bonza!

What for? I hear you ask. Well, Deezer, apart from having plenty of Duran Duran, also have a terrific range of relaxing music to help soothe and relieve jangling nerves and tired minds. Just go to Deezer.com, put ‘soothing’ into the search bar and you’ll see what I mean.

If you click on the little heart icon which appears over the ‘album cover’ then this will be kept in your listing and added to you app when you run it. And it’s all legitimate and free.

In no time you’ll be a proper Deezer Geezer, sippin’ a Bacardi breezer while chillin’ like a freezer, innit?! (I don’t actually get paid for this, you know).

So, that’s it for now. The next meeting is on the 12th at 1:30, just like it says on the website. See you there!


All the best,